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De-Identified Data: Ethics and Regulation

Video:

De-Identified Data: Ethics and Regulation

Powerpoint Slides:

De-Identified Data: Ethics and Regulation.ppt

Description:

On December 22, 2016, Peter Schwartz, MD, PhD gave a presentation on the ethics and regulations involving de-indentifying data from research in order to protect patient privacy. The video of the presentation and the slides from the powerpoint presentation can be accessed with the links above.

Additional Resources:

Office for Human Research Protections: Common Rule: Coded Private Information or Specimens Use in Research, Guidance (2008)

Health Insurance Portability and Accountability Act (HIPAA), Privacy Rule

De Montjoye, Y. A., Radaelli, L., & Singh, V. K. (2015). Unique in the shopping mall: On the reidentifiability of credit card metadata. Science, 347(6221), 536-539.


 

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