De-Identified Data: Ethics and Regulation
On December 22, 2016, Peter Schwartz, MD, PhD gave a presentation on the ethics and regulations involving de-indentifying data from research in order to protect patient privacy. The video of the presentation and the slides from the powerpoint presentation can be accessed with the links above.
Office for Human Research Protections: Common Rule: Coded Private Information or Specimens Use in Research, Guidance (2008)
Health Insurance Portability and Accountability Act (HIPAA), Privacy Rule
De Montjoye, Y. A., Radaelli, L., & Singh, V. K. (2015). Unique in the shopping mall: On the reidentifiability of credit card metadata. Science, 347(6221), 536-539.