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Health Information, Big Data, and Privacy

Data Sharing

Current Projects

  • Big Data Use by Genomics and Health Informatics Researchers: Identifying the "Top Ten" Impediments and Solutions, Funder: CLEAR, PI: Eric M. Meslin

Publications

  • Goodman KW and Meslin EM, Ethics, Information Technology, and Public Health: Duties and Challenges in Computational Epidemiology In. JA Magnusen, Paul Fu, and James Aspevig eds. Public Health Informatics and Information Systems . New York: Springer, 2014: 191-209.
  • Meslin EM, Alpert SA, Carroll AE, Odell JE, Tierney WM, Schwartz PH.  Giving patients granular control of personal health information:  Using an ethics ‘Points to Consider’ to inform informatics system designers.  International Journal of Medical Informatics 2013; 82:1136-1143.

Privacy and Confidentiality

Publications

  • Chen JY, Xu H, Shi P, Culbertson A, Meslin EM. Ethics and privacy considerations for systems biology applications in predictive and personalized medicine. In Liu LA, Wei D, Li Yixue, Lei H, editors. Handbook of Research on Computational and Systems Biology: Interdisciplinary Applications. Hershey, PA: IGI Global, 2011. P. 1-27.
  • Hampikian G, Meslin EM. Law, bioethics and the current status of ownership, privacy, informed consent in the genomic age. Pac Symp Biocomput. 2012:441. PubMed PMID: 22174299.
  • Allen J, Hulman D, Meslin EM, Stanley F. Privacy protectionism and harms to health: is there any redress? Journal of Law and  Medicine 2013; 21: 473-48.

Electronic Health Records

Current Projects

  • Aspiring to Awesome:  Advance Query for Patient Care, Funder: Dept. of Health and Human Services, Investigators: Eric M. Meslin,  Peter H. Schwartz

Publications

  • Were MC, Meslin EM. Ethics of implementing Electronic Health Records in developing countries: Points to Consider. AMIA Annu Symp Proc. 2011;2011:1499-505. Epub 2011 Oct 22. PubMed PMID: 22195214; PubMed Central PMCID: PMC3243215.
  • Meslin EM, Alpert SA, Carroll AE, Odell JE, Tierney WM, Schwartz PH.  Giving patients granular control of personal health information:  Using an ethics ‘Points to Consider’ to inform informatics system designers.  International Journal of Medical Informatics 2013; 82:1136-1143.

Study Reports

  • Meslin EM, Alpert S, Carroll AE, Odell JD, Schwartz PH. Points to consider in ethically constructing patient-controlled electronic health records. Indiana University Center for Bioethics. August, 2012.http://hdl.handle.net/1805/2936
  • Barrett PR, Meslin EM, Schwartz PR, Girod J, Odell JD, Quaid K, Wolf J. Report from the PredictER Expert Panel Meeting, November 2, 2007. Indiana University Center for Bioethics. January, 2008. http://hdl.handle.net/1805/1711

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